Last blog post for awhile...
Meara and Megan are home. Meara was discharged Saturday. My Mom flew home this morning and made it safely back to Florida.
Still monitoring Meara's temperature. It rises when off the Tylenol. Still hoping for the fluid in her head to dissipate. The IV meds will run for two weeks. When they run the course then we discuss further steps at that point (shunt, etc.)
Meara has an appointment with neurosurgery in the clinic on Thursday for followup.
We are indebted to all of you that have taken the time, energy, and effort to reach out to us in all avenues (phone, text, email, Facebook, etc.)
Meals are in abundance. Thank you to Katie Finn (our OT at Foothill) for the dinner Saturday night. She did this for us while losing gas and electricity in her home due to the frigid arctic weather that has come through. Thank you also to Patti, Jim, and Emily for the delicious chili, cornbread muffins, and cookies for dinner. Thank you for driving out to Lafayette to spend time with us in conversation, delicious food, and good times. Meara really enjoyed her time with Emily. Thank you Emily for your smiles and caring heart.
Megan has already taken the lead but now it's my turn. I'm also taking a long indefinite hiatus from Facebook. This whole thing is so much heavier than we could ever imagine. But we keep a light burning. Even if it is burning at both ends...we keep it burning. It is time for Megan and I to turn towards our family and focus on the simpler things.
I know that those of you who are connected to us will continue to do so through phone calls, texts, email, conversations over dinner or coffee...we aren't disconnecting from you. Just disconnecting from Facebook.
Always grateful for all of you. Will continue to update the blog when Meara's progress/treatment changes. You can always sign up for alerts from blogger if you would like to know if there has been a update.
My email address is firstname.lastname@example.org.
Please don't hesitate to reach out.
All our love,
Aaron & Megan