Sunday, January 27, 2013

The Journey Continues...


This Thursday we admit Meara to Children's once again.  For some time we've suspected that she's been having seizure activity. When they first reappeared back in November we just couldn't talk about it. Now, we are starting over essentially and realizing that we aren't done learning and Meara isn't done teaching us. Thursday she has an overnight EEG and video monitoring to hopefully capture seizure activity and guide the doctors to decide what we can do from here. Meara is thriving. As usual she lives in the moment and exudes a free spirit that baffles us every day. In a world where nothing is promised it takes strong courage to stay focused on what really matters. I can say with every ounce of my being that I've been struggling to find the meaning in this journey with my beautiful, I mean extraordinarily beautiful,  daughter. Although I can honestly say that I've felt defeated and that I've failed her as a Dad...I've never stopped believing in her courage and her ability to grow that enormous heart even bigger through every difficult turn in her few short four years. She's bigger than epilepsy and she's not a victim. She's a child who's soul has taught Megan and I more about living than any person or experience in our lives. There is no timeline to this journey. It's not easy but the clarity is enormous. Prayers and positive vibes are always appreciated. Nothing like brain surgery this time around. Only the realization that we start over with where to go with treatment again. Love to all.

(Photo by Laurel Riffey)

9 comments:

  1. Aaron, thank you for the update on your beautiful daughter. Your journey is wrapped in hers, entwined in love and courage. Our hearts are with you. Grateful for every day that we live and breathe and get to enjoy our lives with our loved ones. Living in the moment, for that is all we really have. Sending positive vibes your way....

    ReplyDelete
    Replies
    1. Thank you Mrs. Turon. Thank you for your prayers and positive affirmation. You are a blessing. Love, The Edringtons

      Delete
  2. Aaron, this picture is absolutely beautiful! And Bro: you have NOT failed her. Hear me? You are NOT a failure. You are my hero, and I bet you are her hero, too!

    ReplyDelete
    Replies
    1. Thank you Sis. You mean the world to me. Thank you for loving me and our family. You are a gift.

      Delete
  3. We will be praying for God's comforting hand during this time.

    ReplyDelete
  4. Thinking of you, Megan, Meara, and Ainsley.

    ReplyDelete
    Replies
    1. Thanks Cuz! Congratulations on your engagement! Love, AJ

      Delete
  5. We are sending you our love today and hope that the monitoring tonight yields helpful options. Aaron, you can't possibly have failed her. She is so incredibly fortunate to have you and Megan. It's okay to feel exhausted and disappointed, but know that these circumstances do not stem from a failure on your part.

    Best wishes and love.

    ReplyDelete
    Replies
    1. Tim, I can't tell you how much your kind words mean to me. You've been a trusting friend to me this past year and I appreciate the opportunity to share with you honestly and openly. I have a great deal of respect for both you and Heather and the way you raise your family. Thank you for supporting us and for loving our family. Peace, Aaron

      Delete