RNS

Update on Meara:

Megan received a email from Meara's neurologist that even though Children's hasn't gotten FDA approval they have implanted two children with RNS (nueropacemaker).

So we meet with Dr. Koh on Monday to discuss Meara's case and (hopefully) see if she can be a candidate for the RNS surgery.

Wish us luck!  When we told Meara she cried happy tears.  We reminded her that there is no guarantee that RNS would work but that if she was willing to give it a try that it could provide the seizure control we are hoping for.

More as we go along.

Love,
Megan and Aaron