Hi All,
Meara had another good day today. She started the day with OT, getting dressed and brushing teeth. When she walked down the hall she saw Aaron getting off the elevator and ran into his arms. She went to speech on her own today and supposedly was talking her therapists ear off. Then in the afternoon PT took her to a different gym at the other end of the hospital and she walked, galloped and skipped. Meara is showing them all what a strong and vibrant girl she is. We are very proud of her.
The good news is that the fluid has not recollected since the drain was taken out. We will still have to wait a few days for them to decide if they are satisfied with the medicine she is now on. Our nurse spent time with both of us today showing us how to flush Meara's PICC and administer the antibiotics. We are lucky to have some wonderfully patient and understanding nurses.
Chris was treated to a private recital in Meara's room. I guess that's the reward for being the person who has visited the most! They also painted together. Thanks Chris for loving Meara and taking the time to see her so much while we've been here.
Ainsley misses Meara so much. She is always so happy to see her and love on her (not to mention mooching her French fries and watermelon). When she got in her car seat to go home she started crying and was pretty upset the whole way home. We can't wait to be home as a family again. Luckily Ainsley has her cousins at home to play with right now. She is having a great time with Adaline, Will and Aunt Christy. Thanks for keeping her happy!
Meara and Aaron went down to the cafeteria and had ice cream and read some books together. It is definitely nice that Meara has a little freedom now she only has to be hooked up periodically for her meds.
To quote Master Oogway from Kung Fu Panda, "Yesterday is history. Tomorrow is a mystery. But today is a gift, and that is why it's called the present." We are trying to celebrate each day. Every smile. Every hug. Every word. Every moment. Every day without a seizure. Taking time to be grateful for each day with our girls.
Love and Gratitude,
Megan and Aaron
Meara had another good day today. She started the day with OT, getting dressed and brushing teeth. When she walked down the hall she saw Aaron getting off the elevator and ran into his arms. She went to speech on her own today and supposedly was talking her therapists ear off. Then in the afternoon PT took her to a different gym at the other end of the hospital and she walked, galloped and skipped. Meara is showing them all what a strong and vibrant girl she is. We are very proud of her.
The good news is that the fluid has not recollected since the drain was taken out. We will still have to wait a few days for them to decide if they are satisfied with the medicine she is now on. Our nurse spent time with both of us today showing us how to flush Meara's PICC and administer the antibiotics. We are lucky to have some wonderfully patient and understanding nurses.
Chris was treated to a private recital in Meara's room. I guess that's the reward for being the person who has visited the most! They also painted together. Thanks Chris for loving Meara and taking the time to see her so much while we've been here.
Ainsley misses Meara so much. She is always so happy to see her and love on her (not to mention mooching her French fries and watermelon). When she got in her car seat to go home she started crying and was pretty upset the whole way home. We can't wait to be home as a family again. Luckily Ainsley has her cousins at home to play with right now. She is having a great time with Adaline, Will and Aunt Christy. Thanks for keeping her happy!
Meara and Aaron went down to the cafeteria and had ice cream and read some books together. It is definitely nice that Meara has a little freedom now she only has to be hooked up periodically for her meds.
To quote Master Oogway from Kung Fu Panda, "Yesterday is history. Tomorrow is a mystery. But today is a gift, and that is why it's called the present." We are trying to celebrate each day. Every smile. Every hug. Every word. Every moment. Every day without a seizure. Taking time to be grateful for each day with our girls.
Love and Gratitude,
Megan and Aaron
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